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SDBTT Patient Support

Heather Waterton

 

My name is Heather and I am the Patient Support Manager here at Samantha Dickson Brain Tumour Trust.

I would be very happy to help by talking to you on the phone and sending information if you would like to contact me in one of the following ways:

- Telephone 0845 130 9733
- Email - patientinfo@sdbtt.co.uk

Whether you are making contact for yourself or on behalf of a relative or friend, it is helpful for me to know the type and grade of brain tumour of the person concerned and their name, age and contact details.

We are proud of the reputation the Trust has built up over the years of providing help and support to patients and their carers. Here is just a very small sample of some of the comments people have made:

"Your letter to me was a ray of hope during a time when I felt as though my world was falling apart.....thanks for your help and support during a sad time"
DG, Cambs

"Thank you for your kindness......what a great help and support you were when we were so desperate"
DT, Warwicks

"Even though you don't know us, you took the time to think of us, and that has been so rare over the last three years"
SL, West Midlands

"Thank you for giving us hope when we kept coming up with closed doors"
TA, Hants

Information Day - 17th March 2008

Presentations and handouts from this well attended day in London are downloadable as pdf files. 

Please email if you would be interested in future Information Days.

Returning to School - for pupils with a brain tumour

This excellent guide is directed at teachers but may be helpful for parents as well.   It is available free of charge from:

Cerebra

Principality Buildings, Guildhall Square,

Carmarthen  SA31 1PR

Tel: 01267 244200

The book is also downloadable from the IBTA website but please be aware, it is a large file!

A trial looking at radiotherapy with Tarceva for lung cancer that has spread to the brain (TACTIC)

This clinical trial is being run by Cancer Research UK .  They wish to recruit people with advanced non small cell lung cancer which has resulted in secondary brain cancer.

In this trial, people with non small cell lung cancer that has spread to the brain will either have

The aim of the trial is to find out if Tarceva combined with radiotherapy to the brain is a better treatment than radiotherapy on its own. And to find out more about the side effects of the treatment.

Please visit the website or contact Christina Wadsworth for more information.

 

 

 

 

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